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Events Archive

Cystic Fibrosis Genes & Gene Therapy

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Members from the UK CF Gene Therapy Consortium discuss CF genes and the gene therapy trial.  Please tell us what you think so that we know what we did right and what we can do better. Other links mentioned during this event: CFTR2 project; Hospital for Sick Kids CF mutation database; CF Europe monkey trail […]

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Cystic Fibrosis Trust International Conference

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Ed Owen (CEO, Cystic Fibrosis Trust) and Dr Richard Seabrook (Wellcome Trust) Open the event     Professor David Lomas, University College London – Targeted gene correction of α1-antitrypsin deficiency in induced pluripotent stem cells         Plenary: Introduced by Professor Stuart Elborn CBE:  Professor Stephen Holgate CBE, University of Southampton – The […]

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Event: Kalydeco Special

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Here are the recordings from the first live CFUnite event – Kalydeco Special. Prof Alan Smyth and David Noonan introduce Dr David Sheppard who tells us all about CFTR, the basic problem that underpins cystic fibrosis. Prof Stuart Elborn presents the results of the first large scale clinical trial of Ivacaftor (Kalydeco) for those with G551D and Dr Michael Boyle delivers the results of the trial that examined the effect of Ivacaftor given to people with dF508 along with a CFTR corrector (VX-809). Ed Owen and David Noonan finish the session discussing what it’s like to have CF, take Ivacaftor and discuss the power of an united community of people with CF. All answer YOUR questions.

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UK Cystic Fibrosis Clinical Trials Meeting

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The first UK Cystic Fibrosis Clinical Trials meeting was held to discuss important aspects of undertaking clinical trials in CF.  Health professionals were in the room and it was also streamed online so that questions and comments could be put to the panel during the meeting. Dr Simon Langton-Hewer introduces the day and a summary […]

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