Cystic Fibrosis Unite | Cystic Fibrosis Priority Setting Partnership

Cystic Fibrosis Priority Setting Partnership

 
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 THANK YOU TO ALL THOSE WHO HAVE HELPED SHAPE THE FUTURE OF CF RESEARCH

 

“Bringing together people who have cystic fibrosis (CF), their families and friends,  

plus the health professionals who look after them,

to identify and focus the future of research in CF treatment.”


In CF care there are many situations where we do not know which treatment is best. We estimate that there are over 300 important research questions about CF treatment, which are currently unanswered. We call these treatment uncertainties.

Presently researchers choose their projects because they are fashionable, of personal interest or, commonly, of interest to funders including the pharmaceutical industry. The priorities of patients, carers and clinicians are often overlooked.

The Cystic Fibrosis James Lind Alliance Priority Setting Partnership, based at The University of Nottingham, was set up to bring people with CF, those close to them and clinicians with an interest in treatment of CF together on an equal footing to

Watch this short video to find out how we went about finding the Top 10 

Thank you to everyone who took part.