Cystic Fibrosis Unite | How will our partnership work?

How will our partnership work?

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Watch this short video to see how it worked…


Steps in our partnership

There are several steps in the prioritisation process, all involving collaboration between people with CF, their families and clinicians.

  1. Identification and invitation of potential partners

  2. Initial steering group meeting/ awareness raising

  3. Identifying treatment uncertainties (initial survey)

  4. Refining questions and uncertainties

  5. Prioritisation – interim and final stages (ranking survey and final workshop)

  6. Dissemination of findings




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